June 27th – Salt Lake City, Utah

This has been a very exciting day! We had a TV interview with Utah’s local ABC station, we met with the Utah Attorney General Mr. Sean Reyes (who also grew up on the Big Island of Hawaii), and we had an amazing patient meet and greet with fellow PPP patients from the area. The day was an amazing one, and I must say, an inspiring one. Every time I hear a fellow patients story, every time I encounter someone else who has been affected adversely by rare diseases, every time I hear one of those people tell me how meaningful what I am doing is… It is the biggest inspiration you can imagine.